Patient and next-of-kin collaboration for better research and healthcare: Collaboration 2.0: Sustainable collaboration for value and innovation

Patient and next-of-kin involvement is too often treated as a necessary evil or a box to be casually ticked, rather than a central, value-creating activity. In this report, we have built on established frameworks and toolkits and drawn on the documented experiences of collaboration between patients, next of kin, research and healthcare.