Biobank Cohort Forum
Webinar series organised by Biobank Sweden and Cohorts.se.
Coming up next:
What is Biobank Sweden doing to reduce the legal and administrative hurdles in biobank research?
Speaker: Katarina Trygg, Legal adviser, Uppsala University
In February 2023 we held a workshop called ”Sitter det käppar i kohortforskningens hjul?”. The outcome of the workshop was clear – legal and administrative hurdles are a major hindrance to medical research and often exasperated by the fact that universities in Sweden do not have a common interpretation of the law. We need the legal advisers to talk to each other!
So, the Biobank Sweden legal group arranged a case-based workshop series for legal advisers at universities and regions about legal interpretation.
Katarina Trygg, legal advisor and member of the Biobank Sweden legal group will tell us about what happened in the previous workshop series and what Biobank Sweden plan to do next – in order to reduce the legal and administrative hurdles in biobank research.
Don’t forget to bring your questions with you for the open Q&A and discussion following the talk!
Date: November 7, 2024
Time: 12:00-13:00 (Central European Time)
About: The webinar is free of charge and will be live-streamed.
Use this link: https://umu.zoom.us/j/65245162115
Or register below to receive a standing invitation to the Biobank Cohort Forum!
Previous webinars
EP8: Is storage on a dry matrix a viable option in clinical research and an alternative to discarding sample collections?
In this episode, we focus on the potential of filter paper for storing samples. What kind of analyses are possible with filter paper samples, and what kind of analyses are not? Is filter paper an alternative when sample collections otherwise need to be discarded?
Speaker
Ulf Gyllensten, Professor, Uppsala University
EP6: Creating an Environment for Sustainable Biobanking – lessons from the Netherlands
In this episode, Rogier van der Stijl will present the approach, results and impact of this BBMRI.nl project, including what lessons we can take with us regarding sustainability of Swedish biobank cohorts.
Speaker
Rogier van der Stijl, Project manager, Cohort and Biobank Coordination Hub, University Medical Center Groningen, Netherlands
EP5: The European Health Data Space and Biobanking – are there conflicting goals in relation to GDPR?
The establishment of a European Health Data Space (EHDS) is a key priority of the European Commission and its European strategy for data 2019-2025.
In this episode, Dr. Michaela TH. Mayrhofer discusses EHDS in relation to biobanking practices, data protection, secondary use of health data for research, innovation, stakeholder involvement and altruism in research.
Speaker
Dr. Michaela TH. Mayrhofer, Head of ELSI Services & Research, BBMRI-ERIC
EP4: Proteomics at Population Scale: Early findings from the UK Biobank Pharma Proteomics Project
In our fourth episode, we focus on early findings from the UK Biobank Pharma Proteomics Project and the possibilities for proteomics research using large population cohorts.
Speakers
Cynthia Lawley, Director of Population Health at Olink
Dr. Chris D. Whelan, Director, Data Science, Neuropsychiatry at Johnson & Johnson
EP3: The case for federated analysis: a DataSHIELD perspective
In this episode, Dr. Becca Wilson presents and discusses DataSHIELD, an analytic platform comprising a suite of open-source software and a range of disclosure control methodologies to facilitate the co-analysis of individual-level data from several studies, without the need of sharing data outside of the host institution.
Speaker
Dr. Becca Wilson, University of Liverpool
EP2: Harmonizing research data: what should we keep in mind?
In this episode of the Biobank Cohort Forum, Dr. Isabel Fortier who is leading the Maelstrom Research Platform shares some of her knowledge regarding harmonization of research data.
Speaker
Dr. Isabel Fortier, Research Institute of the McGill University Health Centre
EP1: The new Swedish National Biobank Registry:
What’s there? Can any human study now be turned into a biobank study?
In this episode of the Biobank Cohort Forum, Hanna Fransson presents the Swedish National Biobank Registry (SBR) and Dr. Andrea Ganna shares some of his experiences of biobank research in Finland.
Speakers
Hanna Fransson, Regional Biobank Centre (RBC) Mellansverige
Dr. Andrea Ganna, Institute for Molecular Medicine Finland, University of Helsinki